Long-time readers and friends may know that I have been struggling with my health for a while (as in, since my early 30s). Recently I discovered there was a name for what I have: ME/CFS. Yay?
There's no cure. There's no real test. There's just daily life to be gotten through, and endless excuses/explanations as to why I can't or won't do something. This article with Six ways to live well with a chronic illness is one of many that have come out to explain what's going on or how to explain it to others.
Years ago a doctor told me to practice Energy Conservation and Management (ECAM). Luckily, things aren't so bad (yet) that most of the ideas are not necessary. But choices need to be made: one late night can lead to three-four days recovery. A day at work means no energy when I get home and the weekend is for recovery. Going to an evening wedding reception and closing down the place isn't possible, but going until about 8pm is possible (as is the prayer that the hosts will understand). Conferences need to have downtime built in, as the 6:30am-10pm days of meetings/sessions/events are long past.
Working from home has made self-care easier. And yet... I'm on the verge of collapse. Thing One thinks it's because the stress of the past fifteen months has caught up with me now and my body is saying "relax, it's ok". My goal/commitment to myself for the upcoming school year is to find ways to take more time for me so that this time next year there's more "oomph" to the start of summer vacation.