It's time for me

Long-time readers and friends may know that I have been struggling with my health for a while (as in, since my early 30s).  Recently I discovered there was a name for what I have: ME/CFS.  Yay?

There's no cure.  There's no real test.  There's just daily life to be gotten through, and endless excuses/explanations as to why I can't or won't do something. This article with Six ways to live well with a chronic illness is one of many that have come out to explain what's going on or how to explain it to others.  

Years ago a doctor told me to practice Energy Conservation and Management (ECAM).  Luckily, things aren't so bad (yet) that most of the ideas are not necessary.  But choices need to be made: one late night can lead to three-four days recovery.  A day at work means no energy when I get home and the weekend is for recovery.  Going to an evening wedding reception and closing down the place isn't possible, but going until about 8pm is possible (as is the prayer that the hosts will understand).  Conferences need to have downtime built in, as the 6:30am-10pm days of meetings/sessions/events are long past.  

Working from home has made self-care easier.  And yet... I'm on the verge of collapse.  Thing One thinks it's because the stress of the past fifteen months has caught up with me now and my body is saying "relax, it's ok".  My goal/commitment to myself for the upcoming school year is to find ways to take more time for me so that this time next year there's more "oomph" to the start of summer vacation.


Notable Quotes

This has been my lifelong dream.  Ok, maybe not a lifelong dream, but definitely it's in the 50-year long dream range.  Since my first read of this book, I've wanted to have this schedule:

"Anything as long as it's nothing, and everything as long as it isn't anything," explained another.  "There is lots to do; we have a very busy schedule—

"At 8 o'clock we get up and then we spend

"From 8 to 9 daydreaming.

"From 9 to 9:30 we take our early midmorning nap.

"From 9:30 to 10:30 we dwadle and delay.

"From 10:30 to 11:30 we take our late early morning nap.

"From 11:00 to 12:00 we bide our time and then eat lunch.

"From 1:00 to 2:00 we linger and loiter.

"From 2:00 to 2:30 we take our early afternoon nap.

"From 2:30 to 3:30 we put off for tomorrow what we could have done today.

"From 3:30 to 4:00 we take our early late afternoon nap.

"From 4:00 to 5:00 we loaf and lounge until dinner.

"From 6:00 to 7:00 we dillydally.

"From 7:00 to 8:00 we take our early evening nap. and then for an hour before we go to bed at 9:00 we waste tame..."

The Phantom Tollbooth, Norton Juster 



Digital Detritus

Here we go, a year's worth of links and fun stuff.  Now that School's Out for the Summer, I have time to play!



 The other day, my cousin sent me this on Instagram:

It may surprise you, but I know several cat owners who have been working from home for the past, well, forever.  So of course I wanted to share it with them.  Imagine my surprise when this popped up:

I get why IG (part of the Facebook family) is trying to do but really?  Does anyone doubt the information contained in a New Yorker cartoon?