According to the NYTimes, President Calls for Genetic Privacy Bill. Finally!
My ancestry is Eastern European Jew. We seem to have a high incidence of breast cancer, and many women should get the genetic testing done to help monitor this. However... if you get the testing and you test positive for the gene, then the only thing you can do is get prophylactic mastectomies. Insurance companies consider it a "pre-existing condition" if you've tested positively. What utter bullshit. Positive doesn't mean "definitely, 100% gonna get it and get it bad", it means "be on the alert because you've got a pretty good chance you will get it but we may be able to treat early and save everything." The corollary to that is that negative does not mean you'll never have to worry.
With luck, this bill will pass.